LGMD “SPOTLIGHT INTERVIEW”

 

Name:  Ben  Age:  23 yrs. old

Country: Hong Kong

LGMD Sub-Type: LGMD2A / Calpainopathy

 

At what age were you diagnosed:

I was diagnosed at the age of 21.

What were your first symptoms:

I developed bilateral heel cord contractures which caused toe-walking.

Do you have other family members who have LGMD:

My brother displays similar symptoms but he has not been officially diagnosed yet.

What do you find to be the greatest challenges in living with LGMD:

Right now, the greatest challenges for me include difficulty in climbing stairs and walking long distances.

What is your greatest accomplishment:

Not allowing this disease to affect my studies.

How has LGMD influenced you into becoming the person you are today:

Having LGMD has made me stronger, with a strong will and perseverance.

What do you want the world to know about LGMD:

I want the world to know that LGMD can affect people at any age – children, teens, young adults and adults.  It is important that more people need to know about LGMD.

If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do:

If my LGMD could be cured tomorrow, the first thing that I would want to do is to engage in some sporting activities as LGMD currently restricts me from participating.

 

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