Community Network

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

LGMD News Magazine

Delve into the LGMD News Magazine, a quarterly publication by The Speak Foundation, offering the latest research and insights for the LGMD community.

LGMD ORGANIZATIONS

Discover a comprehensive list of organizations and foundations dedicated to supporting research, services, and awareness for Limb-Girdle Muscular Dystrophy (LGMD) across the globe.

LGMD RELATED BLOGS

Immerse yourself in a diverse collection of LGMD-related blogs, YouTube channels, and podcasts, offering personal experiences, insights, and stories from individuals living with limb-girdle muscular dystrophy.

LGMD SPECIALISTS

Explore a comprehensive directory of medical centers and specialists with significant expertise in LGMD research and clinical care.

LGMD ONLINE SUPPORT GROUPS

Dive into a diverse range of Facebook support groups, providing a platform for individuals with LGMD and their families to share experiences, ask questions, and connect with a global community.