Navigating LGMD

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

Here, you’ll find resources specifically designed to help patients, caregivers, and healthcare providers understand and manage Limb-Girdle Muscular Dystrophy (LGMD). This section covers everything from recognizing symptoms to treatment strategies and daily life management. It also connects you to the larger LGMD community.