For Patients

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

INTERNATIONAL LGMD PATIENT REGISTRIES

Essential information for patients with limb-girdle muscular dystrophy (LGMD) on the importance of registering in the international LGMD patient registries, detailing the benefits and services they can access upon registration.

LGMD GRANT OPPORTUNITIES

Explore a comprehensive guide to grant opportunities designed to support individuals with limb-girdle muscular dystrophy (LGMD) in various aspects of their lives.

CLINICAL TRIALS RESOURCES

Delve into a comprehensive guide on resources and information related to clinical trials for limb-girdle muscular dystrophy (LGMD) patients.

Diagnostic & Care

Dive into a comprehensive resource hub dedicated to diagnostic and care options for individuals with limb-girdle muscular dystrophy (LGMD).

Finances

Navigate a curated collection of financial resources tailored to support individuals with limb-girdle muscular dystrophy (LGMD) in managing the economic challenges of their condition.

PATIENT & FAMILY RESOURCES

Access a wealth of resources tailored for both patients with limb-girdle muscular dystrophy (LGMD) and their families, covering topics from career opportunities to practical care guidance.