LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

7th Annual LGMD Awareness Day – September 30, 2021

As the world celebrates the 7th annual LGMD AWARENESS DAY on September 30, 2021, we invite you to help us Advocate • Educate • Celebrate!

There is great strength in awareness, understanding and unity. The LGMD community demonstrates global connectivity each year when we campaign together and gain recognition for limb-girdle muscular dystrophy (LGMD). With over 30 different genetic types of LGMD, the act of collaborating globally makes us stronger than we could ever be alone. Whether you are a long-time community member, or new to the scene, your participation in the 2021 LGMD Awareness Day activities is important. Awareness can spread much faster with more individuals, from all parts of the world, sharing their spirit remotely through re-posts, shout outs and snaps of the LGMD Awareness sticker to your favorite platforms. There is power in action.

TOGETHER WE ARE STRONGER!

Take a moment to shine a light on the importance of LGMD Awareness today!

ADVOCATE:

2021 GIRDIE STICKER CAMPAIGN

Upload a picture of you and your Girdie sticker to social media on or around September 30. Please include your location, the hashtag #LGMDawareness and don’t forget to tag @LGMDawareness so we can see where in the world Girdie is spreading LGMD awareness!

EDUCATE:

KNOW THE FACTS ABOUT LGMD & HELP RAISE AWARENESS

Help Girdie educate the world about LGMD. Share these facts with family, friends, co-workers, and your community.

1. Limb-girdle muscular dystrophy (LGMD) is rare neuromuscular conditions that causes severe muscle loss and affects people all over the world.

2. Early symptoms of limb-girdle muscular dystrophy (LGMD) may include difficulty climbing stairs, frequent falls, difficulty rising from a seated position or even the inability to stand on toes.

3. Currently there is no cure, but every year, science is moving closer to a treatment for limb-girdle muscular dystrophy (LGMD) thanks to the members of the scientific community and the organizations who fund their research efforts.

4. There are over 30 different types of limb-girdle muscular dystrophy (LGMD), each caused by mutations in a different gene. Because the different forms of LGMD look very similar in clinical tests, genetic testing is required to confirm a diagnosis.

For more LGMD Facts, click here.

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CELEBRATE:

LIME GREEN FOR LIMB GIRDLE AWARENESS CAMPAIGN

As you celebrate, consider wearing lime green colored attire and wristbands to help raise awareness. When posting your pictures on social media, please include your location, the hashtag #LGMDawareness and don’t forget to tag @LGMDawareness.

DOWLOAD THE 2021 LGMD AWARENESS DAY FLYER