All About LGMD

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

Embark on your journey to understanding Limb-Girdle Muscular Dystrophy (LGMD) with our comprehensive ‘LGMD Overview & Facts and ‘Glossary of Terms’ sections. ‘LGMD Overview & Facts’ dives deep into the various facets of this condition, from its basic definitions, genetic influences, and symptom progression to its daily impact and the latest in treatment and research. Our ‘Glossary of Terms’ serves as a handy reference guide, clarifying complex terminologies and specialized vocabulary used in discussing LGMD. Together, these resources aim to empower you with knowledge and enhance your grasp of this complex condition.