Girdie

Meet
Girdie

About Us
Events
Contact

Search query

Awareness Day
Knowledge Base
Spotlights

Skip to content

About Us
Events
Contact
Shop
Donate
search
English

English

English

Awareness Day
LGMD Awareness Day Toolkit

Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit
About LGMD Awareness Day

LGMD Awareness Day is an annual effort to draw attention to this rare disease.

Learn more about LGMD Awareness Day
Initiatives

Join us as an “Ambassador” for Limb-Girdle Muscular Dystrophy Awareness Day.

Become an ambassador
Resources

Our LGMD Awareness Day Resources page offers a variety of tools and materials.

View LGMD Awareness Day resources
Become a Sponsor

Your sponsorship will propel us towards a future where every individual with LGMD has access to the care, support, and treatments they deserve.

Download Sponsorship Form
Meet Girdie
Knowledge Base
Knowledge Base

Explore our Knowledge Base for comprehensive information on Limb-Girdle Muscular Dystrophy (LGMD).

Genetic Testing

Discover a comprehensive list of global resources for LGMD genetic testing.

View LGMD genetic testing resources
All About LGMD

Learn key facts and familiarize yourself with crucial terminology about LGMD.

Learn all about LGMD
Navigate LGMD

LGMD resources for patients, caregivers, and healthcare providers.

Find resources to help navigate LGMD
Community Network

Connect with the LGMD community through news, blogs, and more.

Connect with the LGMD community
LGMD Advocacy Bundle (LAB) Program

Advocacy support and helpful tools and resources for staff and patients.

Download Advocacy Bundle Resources
Spotlights
Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

Individuals With LGMD

Read the personal journeys of those navigating life with LGMD.

Read stories from individuals living with LGMD
LGMD Researchers

Showcasing the groundbreaking work of clinical researchers.

Articles from clinical researches in the LGMD field
LGMD Clinic Staff

Highlighting the exceptional stories of clinicians working in the field of LGMD.

Stories from LGMD clinicians
LGMD Organizations

Highlighting the organizations making a difference in the world of LGMD.

Articles from other LGMD organizations
Spotlight Interview Forms

Search query

Individuals with LGMD

Home
Spotlights
Individuals with LGMD

Search query

Individuals with LGMD Spotlights

SPOTLIGHT FORMS

INDIVIDUAL WITH LGMD: Tamara
INDIVIDUAL WITH LGMD: Nancy
INDIVIDUAL WITH LGMD: Dilek
INDIVIDUAL WITH LGMD: Amanda
INDIVIDUAL WITH LGMD: Kelsey
INDIVIDUAL WITH LGMD: Victoria
INDIVIDUAL WITH LGMD: Peter
INDIVIDUAL WITH LGMD: Jacob
INDIVIDUAL WITH LGMD: Heather

Our Advocacy Partners

Treat Nmd

Treat Nmd

Dgm

Dgm@2x

Kurt Peter Foundation

Kurt Peter Foundation

Uildm

Dffoundation

Daniel Ferguson Foundation

The Speak Foundation

The Speak Foundation

Atrium

Mccoll Lockwood Lab 1

Jain Foundation

CureSCG

Curescg

Mda

Mda@2x

Curecalpain3

High Res

proyectoalpha

Proyectoalpha

Curelgmd2i

Curelgmd2i

Lgmd1d@2x

Lgmd1d@2x

CureSCG

Dimus Chile

Sarcoglicanopathy

Sarcoglicanopathy

Lgmd2d Foundation

Lgmd2d Foundation

Ayushkamafoundation

Ayushkamafoundation

Titin My Opathy

Team Titin 2

Lgmd2ifund

Lgmd2ifund

Lgmd2l Foundation

Lgmd2l Foundation

Conquistandoescalones

Conquistandoescalones

Spierkracht Logo Edited

Bandeau Logo Afm Telethon

Adm Org

Adm Org

Awareness Day
Knowledge Base
Spotlights

Awareness Day
Knowledge Base
Spotlights

About Us
Events
Contact
Shop
Donate
search
English

About Us
Events
Contact
Shop
Donate
search
English

Guidestar gold seal

© Copyright 2025 LGMD Awareness Foundation, Inc

Website Hosting Provided by Pantheon

© Copyright 2025 LGMD Awareness Foundation, Inc

Website Hosting Provided by Pantheon

Website Design & Development by Dooley & Associates

Sign up for email updates!

Girdie Envelope

We are using cookies to give you the best experience on our website.

You can find out more about which cookies we are using or switch them off in .

Powered by GDPR Cookie Compliance

Privacy Overview

This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.

Strictly Necessary Cookies

Strictly Necessary Cookie should be enabled at all times so that we can save your preferences for cookie settings.

Enable or Disable Cookies

If you disable this cookie, we will not be able to save your preferences. This means that every time you visit this website you will need to enable or disable cookies again.