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Awareness Day
LGMD Awareness Day Toolkit

Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. Our Awareness Day Toolkit is designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit
About LGMD Awareness Day

LGMD Awareness Day is an annual effort to draw attention to this rare disease.

Learn more about LGMD Awareness Day
Initiatives

Join us as an “Ambassador” for Limb-Girdle Muscular Dystrophy Awareness Day.

Become an ambassador
Resources

Our LGMD Awareness Day Resources page offers a variety of tools and materials.

View LGMD Awareness Day resources
Become a Sponsor

Your sponsorship will propel us towards a future where every individual with LGMD has access to the care, support, and treatments they deserve.

Download Sponsorship Form
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Knowledge Base
Knowledge Base

Explore our Knowledge Base for comprehensive information on Limb-Girdle Muscular Dystrophy (LGMD).

Genetic Testing

Discover a comprehensive list of global resources for LGMD genetic testing.

View LGMD genetic testing resources
All About LGMD

Learn key facts and familiarize yourself with crucial terminology about LGMD.

Learn all about LGMD
Navigate LGMD

LGMD resources for patients, caregivers, and healthcare providers.

Find resources to help navigate LGMD
Community Network

Connect with the LGMD community through news, blogs, and more.

Connect with the LGMD community
LGMD Advocacy Bundle (LAB) Program

Advocacy support and helpful tools and resources for staff and patients.

Download Advocacy Bundle Resources
Spotlights
Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

Individuals With LGMD

Read the personal journeys of those navigating life with LGMD.

Read stories from individuals living with LGMD
LGMD Researchers

Showcasing the groundbreaking work of clinical researchers.

Articles from clinical researches in the LGMD field
LGMD Clinic Staff

Highlighting the exceptional stories of clinicians working in the field of LGMD.

Stories from LGMD clinicians
LGMD Organizations

Highlighting the organizations making a difference in the world of LGMD.

Articles from other LGMD organizations
Spotlight Interview Forms

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Individuals with LGMD

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Individuals with LGMD Spotlights

SPOTLIGHT FORMS

INDIVIDUAL WITH LGMD: Rosamund
Individual with LGMD: William
Individual with LGMD: Tasha
INDIVIDUAL WITH LGMD: Jillena
INDIVIDUAL WITH LGMD: Hasan
INDIVIDUAL WITH LGMD: Tasha
INDIVIDUAL WITH LGMD: Andrea
INDIVIDUAL WITH LGMD: Melissa
INDIVIDUAL WITH LGMD: Heidi

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Our Advocacy Partners

Titin My Opathy

Team Titin 2

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CureSCG

Dimus Chile

Sarcoglicanopathy

Sarcoglicanopathy

Lgmd2d Foundation

Lgmd2d Foundation

Conquistandoescalones

Conquistandoescalones

Ayushkamafoundation

Ayushkamafoundation

Curecalpain3

High Res

Jain Foundation

Uildm

Dffoundation

Daniel Ferguson Foundation

Lgmd2ifund

Lgmd2ifund

Treat Nmd

Treat Nmd

Lgmd2l Foundation

Lgmd2l Foundation

Mda

Mda@2x

Lgmd1d@2x

Lgmd1d@2x

Curelgmd2i

Curelgmd2i

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Atrium

Mccoll Lockwood Lab 1

proyectoalpha

Proyectoalpha

The Speak Foundation

The Speak Foundation

Dgm

Dgm@2x

Adm Org

Adm Org

Kurt Peter Foundation

Kurt Peter Foundation

CureSCG

Curescg

Awareness Day
Knowledge Base
Spotlights

Awareness Day
Knowledge Base
Spotlights

About Us
Events
Contact
Shop
Donate
search
English

About Us
Events
Contact
Shop
Donate
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© Copyright 2025 LGMD Awareness Foundation, Inc

Website Hosting Provided by Pantheon

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