Amie

Amie

LGMD “SPOTLIGHT INTERVIEW” Name:  Amie  Age: 31 yrs old Country: United States LGMD Sub-Type:  LGMD2J (Titinopathy)   At what age were you diagnosed: I was just diagnosed at the age of 31 with LGMD2J – also known as Titinopathy. What

Michele

Michele

LGMD “SPOTLIGHT INTERVIEW”   NAME:  Michele   AGE: 52 Yrs. Old COUNTRY:  United States LGMD Sub-Type:   LGMD2A – Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was initially diagnosed with an unspecified form of muscular dystrophy at the age of

Melanie

Melanie

LGMD “Spotlight Interview” NAME: Melanie   AGE: 33 COUNTRY: USA LGMD Sub-Type: LGMD2b (Dysferlinopathy/miyoshi myopathy)   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed one week before my 29th birthday.   WHAT WERE YOU FIRST SYMPTOMS: I could not

Mary

Mary

04/08/2016 – LGMD “Spotlight Interview” NAME:  Mary   Age: 46 COUNTRY: United States LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed with LGMD when I was 25 years old. What were your first symptoms: My

Janet

Janet

LGMD “SPOTLIGHT INTERVIEW”  – 01/07/2016 NAME: Janet   AGE:  33 yrs. old COUNTRY:  United States LGMD Sub-Type:   LGMD2B   AT WHAT AGE WERE YOU DIAGNOSED: I was originally misdiagnosed with Polymyositis at the age of 17.   Years later at the age of

Molly

Molly

11/30/2015 NAME:  Molly    AGE: 29 years old COUNTRY:  United States LGMD Sub-Type:   LGMD2B: dysferlinopathy/Miyoshi Myopathy   At what age were you diagnosed: I started presenting symptoms when I was 17 and at the time I was told I was suffering

Karen

Karen

11/19/2015 Name:  Karen   AGE: 61 yrs. old Country: United States LGMD Sub-Type: LGMD1B / Laminopathy   At what age were you diagnosed: I was diagnosed when I was 54 yrs. old. What were your first symptoms: My first symptoms included: 

Brad

Brad

09/30/2015: Name:  Brad  Age: 51 yrs. old Country: United States LGMD Sub-Type: LGMD2B/Miyoshi Myopathy   At what age were you diagnosed: I first started having symptoms at 18. But it wasn’t until about 10 years later that a neurologist told

Patricia

Patricia

07/29/2015: NAME: Patricia  AGE:  26 yrs old COUNTRY: United States LGMD Sub-Type:  LGMD2A / Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with MD when I was 12 years old. WHAT WERE YOUR FIRST SYMPTOMS: First symptoms

Rod

Rod

06/25/2015: Name:  Rod   Age: 65 Yrs. Old Country: United States LGMD Sub-Type: LGMD2L /  Anoctaminopathy   At what age were you diagnosed: I was diagnosed at the age of 49. What were your first symptoms: My first symptoms included difficulty

Alicia

Alicia

04/29/2015 Name:  Alicia Age:  38 yrs. old Country: United States LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at age 35 after years & years of being misdiagnosed. What were your first symptoms:

Audrey

Audrey

04/25/2015 NAME:  Audrey AGE: 42 Yrs. Old COUNTRY: United States LGMD Sub-Type: LGMD2i AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with LGMD when I was 37. I had never heard of it before my diagnosis. WHAT WERE YOUR

Jane

Jane

04/20/2015: Name:  Jane Age:  18 yrs. old Country:   United Stated LGMD Sub-Type:  LGMD2i   At what age were you diagnosed: I was diagnosed when I was 5 years old. What were your first symptoms: I was experiencing difficult climbing stairs

Melissa

Melissa

04/08/2015 NAME:   Melissa  AGE:  47 Yrs. Old COUNTRY:  United States LGMD Sub-Type:  LGMD2i AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 18 WHAT WERE YOUR FIRST SYMPTOMS: As a child, I was clumsy. DO

Lacey

Lacey

04/03/2015 NAME:  Lacey    AGE: 42 COUNTRY: United States LGMD Sub-Type: LGMD2i   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with Muscular Dystrophy at 16 and LGMD2i at 34. Both diagnosis’ came over the phone. In hindsight, I wish the doctors would

Jane

Jane

03/22/2015 NAME:  Jane   AGE: 61 COUNTRY: United States LGMD Sub-Type: unknown AT WHAT AGE WERE YOU DIAGNOSED? I was “officially” diagnosed at age 46 but I had symptoms in my late 30’s. WHAT WERE YOUR FIRST SYMPTOMS? I was the

Donavon

Donavon

03/12/2015: Name: Donavon  Age: 52 Country: United States LGMD Sub-Type: LGMD2D At what age were you diagnosed: I was diagnosed at the age of 16 What were your first symptoms: I was never able to run very fast and had

Julianna

Julianna

03/01/2015: NAME: Julianna AGE: 24 COUNTRY: United States LGMD Sub-Type: LGMD2B AT WHAT AGE WERE YOU DIAGNOSED: I started having symptoms at the age of 16 but was not diagnosed until I was about 22 years old. WHAT WERE YOUR

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