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TOGETHER WE ARE STRONGER

Raising awareness and advocating for individuals with LGMD

TOGETHER WE ARE STRONGER

Raising awareness and advocating for individuals with LGMD

TOGETHER WE ARE STRONGER

Raising awareness and advocating for individuals with LGMD

Girdie Sticker 2023

LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular conditions known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public.

By increasing awareness of and advocating for individuals living with limb-girdle muscular dystrophy, we hope individuals living with these progressively debilitating conditions will have an easier time accessing diagnosis, care, and treatment.

AWARENESS DAY

Limb-Girdle Muscular Dystrophy Awareness Day is an annual collaborative effort to globally raise awareness of individuals living with limb-girdle muscular dystrophy (LGMD). The eleventh annual Global “LGMD Awareness Day” will be held on September 30, 2025.

KNOWLEDGE BASE

Whether you’re a patient, caregiver, or a valued member of the LGMD community, we have curated essential resources and information to help you better understand and navigate the complexities of LGMD.

Facts about Limb-Girdle Muscular Dystrophy (LGMD)

Limb-girdle muscular dystrophy (LGMD) is a term for a group of rare conditions that cause weakness and wasting of the muscles in the arms and legs. The muscles most affected are those closest to the body (proximal muscles), specifically the muscles of the shoulders, upper arms, pelvic area, and thighs.

LGMD IS A GENETIC DISORDER

It is not contagious, caused by an injury or any specific activity.

LGMD CAN AFFECT THE HEART AND LUNGS

In some forms of LGMD, breathing and cardiac issues may develop.

LGMD IS A PROGRESSIVE CONDITION

The rate of progression can vary from person to person even within the same LGMD sub-type and in families.

LGMD SYMPTOMS CAN APPEAR AT ANY AGE

Typically, the earlier the onset of the disease, the more severe the symptoms over time.